Let's bring NF Out of the Shadows this May by working together to improve understanding of the signs and symptoms of NF, share the stories of real people affected by the condition and to educate Australians on the diagnosis and treatment.

Neurofibromatosis (NF) is a set of three genetic conditions that cause tumours to form on nerves throughout the body, including the brain and spine. There is no cure and treatment options are limited.

Designed to give YOU exclusive insights into what’s happening in the neurofibromatosis space! Every month join a new expert making waves in the NF space.

An opportunity for health professionals and researchers to come together (in-person and virtual) to network and discuss the latest in medical management, treatment and research into neurofibromatosis in Australia and around the globe.

Want to know whether you or your child is eligible for the TiNT MEK Inhibitor Clinical Trial in Australia? Click the button below to find out more.

Registrations are now open for adults with neurofibromatosis type 1 (NF1) to participate in the international NF1 cutaneous neurofibroma consortium project with Associate Professor Tracey Dudding-Byth.