All funds raised between now and the end of June will go towards funding a potentially life-saving therapy trial for sufferers of NF1.

For some families, this research trial could mean the difference between their child reaching adulthood or not.


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Help us #ConquerNF

NF is a genetic condition affecting up to 1 in 2,500 individuals. 

Our hope is that by raising awareness and much needed funds, we can support our community of individuals, families and health professionals to overcome the challenges of living with and managing NF.


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Remembering Belinda (Bee) Weihen

There are some people in life who make you laugh a little louder, smile a little brighter and live life just a little bit better - and for many in the NF community, Belinda was one of those inspirational people.

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About Us

The Children's Tumour Foundation of Australia is a not-for-profit organisation dedicated to providing information, resources and support services to children, their famililes and adults living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2 and Schwannomatosis. CTF also raises funds to support promising medical research aimed at finding new treatments and ultimately a cure for NF.

What is Neurofibromatosis?

Neurofibromatosis (NF) is one of the most common genetic conditions. It can affect anyone regardless of ethnicity, age, gender or family history. Sufferers develop benign tumours called neurofibromas, which grow around the body's nerve cells - under the surface of the skin, deep in the body, including the spinal cord and brain. These growths can cause sufferers problems with their vision and balance - even blindness and deafness.

NF Heroes

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Help Us Cure NF

Your support will:

  • Find vital research into treatments
  • Fund support programs for sufferers and their families
  • Fund information we provide to educators and health professionals
  • Increase public awareness of NF
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