Dialog Box

Children's Tumour Foundation

HELPING FAMILIES NAVIGATE A PATHWAY FROM FEAR TO HOPE

about us

Discover who we are, what we do and how your support can help change lives.

WHAT WE DO

NEUROFIBROMATOSIS   

Learn about the genetic condition that affects 1 in every 2,500 Australians  

LEARN THE FACTS

LIVING WITH NF

NF is a lifelong medical condition, but the impact of NF changes with each stage of life.

Read more

HOW TO SUPPORT

Fundraise on our behalf, support an existing campaign or use your voice to spark action.

FIND OUT HOW

TOGETHER WE CAN #CONQUERNF

“Parenting a child with a genetic condition can be a stressful and painful journey. Maintaining hope for a better future for the child you love is critical, and at the centre of that hope is research. Knowing that research is ongoing to better understand and treat NF keeps the hope alive for so many of our families."

 NF Hero Mum

DONATE NOW OTHER WAYS TO SUPPORT

Siblings Shelby and Jackson are an inspiration to everyone who meets them. At just 15 and 12 years of age respectively, they courageously face health battles that will leave you in no doubt of their strength and resilience. Both Shelby and Jackson have NF1, but unfortunately their symptoms are incredibly complex and have resulted in more than one near death experience.

Jackson has an intellectual disability, autism and a heart condition that will require surgery at a later point. He also has scoliosis which needs to be closely monitored to ensure it does not put pressure on his heart and lungs and two optic nerve gliomas affecting his vision. Before he had even turned 3, he almost died 7 times. 

Shelby has had to live with a growing hole in her skull (5cm wide) and a tumour that was impinging on the drainage vein in her brain. The hole was caused by the decalcification of the bone and the tumour cannot be fully removed, nor does it respond to chemotherapy. She has recently undergone life-saving surgery to remove part of that tumour and to embed a titanium plate to cover the hole. 

Both Jackson and Shelby were borN Fighters

 SHARE YOUR NF STORY WITH US

Latest News View all news

News

“Sorry COVID, but kindness is also contagious.”

News

We are searching for real NF Heroes to be part of the NF Hero Challenge campaign!

News

Take a look at what went on at our first virtual support session.

News

A message of hope in all of this madness

Donate