Dialog Box

Children's Tumour Foundation

HELPING FAMILIES NAVIGATE A PATHWAY FROM FEAR TO HOPE

about us

Discover who we are, what we do and how your support can help change lives.

WHAT WE DO

NEUROFIBROMATOSIS   

Learn about the genetic condition that affects 1 in every 2,500 Australians  

LEARN THE FACTS

LIVING WITH NF

NF is a lifelong medical condition, but the impact of NF changes with each stage of life.

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HOW TO SUPPORT

Fundraise on our behalf, support an existing campaign or use your voice to spark action.

FIND OUT HOW

TOGETHER WE CAN #CONQUERNF

“Parenting a child with a genetic condition can be a stressful and painful journey. Maintaining hope for a better future for the child you love is critical, and at the centre of that hope is research. Knowing that research is ongoing to better understand and treat NF keeps the hope alive for so many of our families."

 NF Hero Mum

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When Bella was born, she had three birth marks...three seemingly innocent, coffee coloured spots that had quadrupled within six weeks. She was diagnosed with NF1 soon after and now at age 5, she has regular MRIs to monitor tumours compressing her C3-C4 vertebrae. 

Bella will require life threatening spinal surgery, but for now they watch and wait, hoping she can reach 10 years of age, before they are forced to operate.  

She calls her birth marks her “NF spots” and when she has an MRI she tells her friends that the doctors need to take pictures of her “inside spots”. Bella is brave, hilarious and full of spunk. She has faced some developmental delays with speech and fine motor skills, but she is resilient and faces every challenge with positivity and a determination that leaves everyone in awe of her.

This month we are celebrating Bella. She was born on World NF Awareness Day (17 May) in 2014. 

READ BELLA'S STORY SHARE YOUR NF STORY WITH US

Latest News View all news

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We're taking NF support sessions online!

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There is no doubt that life in 2020 has changed the world and us along with it, so this will be one of the most important letters we will ever write to you.

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NF does not hibernate, so neither do we. Our support for the community continues despite COVID-19. Find out what we have been up to!

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Statement from the CTF Board regarding recent changes to the organisation

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