Four family members affected by neurofibromatosis across three generations. The most devastating diagnosis came from the smallest person. Help support families impacted by NF by making a tax deductible donation before June 30.

Registrations are now open for adults with neurofibromatosis type 1 (NF1) to participate in the international NF1 cutaneous neurofibroma consortium project with Associate Professor Tracey Dudding-Byth.

Neurofibromatosis (NF) is a set of three genetic conditions that cause tumours to form on nerves throughout the body, including the brain and spine. There is no cure and treatment options are limited.

Designed to give YOU exclusive insights into what’s happening in the neurofibromatosis space! Every month join a new expert making waves in the NF space.

Want to know whether you or your child is eligible for the TiNT MEK Inhibitor Clinical Trial in Australia? Click the button below to find out more.

An opportunity for health professionals and researchers to come together (in-person and virtual) to network and discuss the latest in medical management, treatment and research into neurofibromatosis in Australia and around the globe.