Dialog Box

Children's Tumour Foundation of Australia

HELPING ANYONE IMPACTED NAVIGATE THE NF JOURNEY

about us

Discover who we are, what we do and how your support can help change lives.

WHAT WE DO

NEUROFIBROMATOSIS   

Learn about the genetic condition that affects 1 in every 2,500 Australians  

LEARN THE FACTS

LIVING WITH NF

NF is a lifelong medical condition, but the impact of NF changes with each stage of life.

Read more

ON THE JOURNEY

Are you thinking it might be Neurofibromatosis, but yet to receive a diagnosis?

WE CAN HELP

TOGETHER WE CAN #CONQUERNF

“Parenting a child with a genetic condition can be a stressful and painful journey. Maintaining hope for a better future for the child you love is critical, and at the centre of that hope is research. Knowing that research is ongoing to better understand and treat NF keeps the hope alive for so many of our families."

 NF Hero Mum

DONATE NOW OTHER WAYS TO SUPPORT

Libby’s NF2 journey began when she was 4 years old. What should have been a simple optometrist appointment for a lazy eye became a diagnosis of NF2 and a brain tumour. At just 4 years of age, one week after her first MRI, Libby was scheduled to have brain surgery. One of the tumours in her brain was causing her eye to push through the socket.

Every year since her diagnosis, Libby has faced another setback. In 2018, she required spinal surgery to remove an egg sized tumour from the lumbar region of her spine. In 2020, Libby had her routine MRI & her parents learnt that the tumour near her brainstem was infiltrating more nerves than originally thought. There is now no medical treatment available for her most dangerous and unstable tumour.

As parents, Cam and Jen crave normality but continue to fundraise and share their experiences in order to help families like theirs and to help children like Libby, find a better “normal”. 

So, what’s within your power to help kids like Libby?

 READ LIBBY'S STORY HERE

Latest News View all news

News

The secret of change is to focus all of your energy not on fighting the old, but on building the new.

News

The monkeypox outbreak has garnered widespread media attention around the world. Alarmingly there have been recent reports from people who live with the lifelong condition neurofibromatosis (NF), facing adverse reactions, harassment and confusion.

News

The PBAC is interested in hearing from people and families with NF1 and inoperable plexiforms to better understand the impact of the condition and the challenges patients and families face.

News

TiNT is recruiting at twelve centres across Australia and New Zealand with the final site to open in the coming months. Here is an update on the progress being made to date.

Donate