Children's Tumour Foundation

IMAGINE IF TUMOURS WERE YOUR CHILD'S NORMAL

Imagine if you discovered your child's cute birthmarks and freckles were actually markers of a life-long genetic condition that could cause tumours to form on their nerves, brain and spine. Help give hope to families living with NF by making a tax deductible donation today.

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EVERY 3 DAYS A CHILD IS BORN WITH NF IN AUSTRALIA

Neurofibromatosis (NF) is a set of three genetic conditions that cause tumours to form on nerves throughout the body, including the brain and spine. There is no cure and treatment options are limited.

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MAKE YOUR BIRTHDAY EVEN MORE MEANINGFUL

In just four easy steps you can create a Facebook birthday fundraiser that will improve the quality of life for children and adults with NF by helping to fund life-changing support programs.

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HELP US CONQUER NF. BECOME A REGULAR GIVER TODAY.

Good things happen when we come together. Great things happen when we do it regularly. Make a donation or become a regular giver to help support better treatment options and enable access to critical support services.

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HELPING FAMILIES NAVIGATE A PATHWAY FROM FEAR TO HOPE

about us

Discover who we are, what we do and how your support can help change lives.

WHAT WE DO

NEUROFIBROMATOSIS

Learn about the genetic condition that affects 1 in every 2,500 Australians

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LIVING WITH NF

NF is a lifelong medical condition, but the impact of NF changes with each stage of life.

HOW TO SUPPORT

Fundraise on our behalf, support an existing campaign or use your voice to spark action.

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TOGETHER WE CAN #CONQUERNF

“Parenting a child with a genetic condition can be a stressful and painful journey. Maintaining hope for a better future for the child you love is critical, and at the centre of that hope is research. Knowing that research is ongoing to better understand and treat NF keeps the hope alive for so many of our families."

NF Hero Mum

DONATE NOW OTHER WAYS TO SUPPORT

When Bella was born, she had three birth marks...three seemingly innocent, coffee coloured spots that had quadrupled within six weeks. She was diagnosed with NF1 soon after and now at age 5, she has regular MRIs to monitor tumours compressing her C3-C4 vertebrae.

Bella will require life threatening spinal surgery, but for now they watch and wait, hoping she can reach 10 years of age, before they are forced to operate.

She calls her birth marks her “NF spots” and when she has an MRI she tells her friends that the doctors need to take pictures of her “inside spots”. Bella is brave, hilarious and full of spunk. She has faced some developmental delays with speech and fine motor skills, but she is resilient and faces every challenge with positivity and a determination that leaves everyone in awe of her.

This month we are celebrating Bella. She was born on World NF Awareness Day (17 May) in 2014.

READ BELLA'S STORY SHARE YOUR NF STORY WITH US