Children's Tumour Foundation

IMAGINE IF TUMOURS WERE YOUR CHILD'S NORMAL

Imagine if you discovered your child's cute birthmarks and freckles were actually markers of a life-long genetic condition that could cause tumours to form on their nerves, brain and spine.

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EVERY 3 DAYS A CHILD IS BORN WITH NF IN AUSTRALIA

Neurofibromatosis (NF) is a set of three genetic conditions that cause tumours to form on nerves throughout the body, including the brain and spine. There is no cure and treatment options are limited.

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First ever government funding of NF Research Announced

We are beyond excited to announce that the TiNT MEK inhibitor trial is to be the FIRST EVER NF research partially-funded by the Australian Government! This is HUGE NEWS for the NF community and will run alongside three other trials into childhood brain cancer to receive funding from the Medical Research Future Fund (MRFF).

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MAKE YOUR BIRTHDAY EVEN MORE MEANINGFUL

In just four easy steps you can create a Facebook birthday fundraiser that will improve the quality of life for children and adults with NF by helping to fund life-changing support programs.

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HELP US CONQUER NF. BECOME A REGULAR GIVER TODAY.

Good things happen when we come together. Great things happen when we do it regularly. Make a donation or become a regular giver to help support better treatment options and enable access to critical support services.

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HELPING FAMILIES NAVIGATE A PATHWAY FROM FEAR TO HOPE

about us

Discover who we are, what we do and how your support can help change lives.

WHAT WE DO

NEUROFIBROMATOSIS

Learn about the genetic condition that affects 1 in every 2,500 Australians

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LIVING WITH NF

NF is a lifelong medical condition, but the impact of NF changes with each stage of life.

HOW TO SUPPORT

Fundraise on our behalf, support an existing campaign or use your voice to spark action.

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TOGETHER WE CAN #CONQUERNF

“Parenting a child with a genetic condition can be a stressful and painful journey. Maintaining hope for a better future for the child you love is critical, and at the centre of that hope is research. Knowing that research is ongoing to better understand and treat NF keeps the hope alive for so many of our families."

NF Hero Mum

DONATE NOW OTHER WAYS TO SUPPORT

Siblings Shelby and Jackson are an inspiration to everyone who meets them. At just 15 and 12 years of age respectively, they courageously face health battles that will leave you in no doubt of their strength and resilience. Both Shelby and Jackson have NF1, but unfortunately their symptoms are incredibly complex and have resulted in more than one near death experience.

Jackson has an intellectual disability, autism and a heart condition that will require surgery at a later point. He also has scoliosis which needs to be closely monitored to ensure it does not put pressure on his heart and lungs and two optic nerve gliomas affecting his vision. Before he had even turned 3, he almost died 7 times.

Shelby has had to live with a growing hole in her skull (5cm wide) and a tumour that was impinging on the drainage vein in her brain. The hole was caused by the decalcification of the bone and the tumour cannot be fully removed, nor does it respond to chemotherapy. She has recently undergone life-saving surgery to remove part of that tumour and to embed a titanium plate to cover the hole.

Both Jackson and Shelby were borN Fighters

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