Head office / general enquiries
For general enquiries, you can reach us:
Level 15, 1 O'Connell Street, Sydney 2000
PO Box 454, Five Dock 2046
support-related enquiries
You can reach our support team Monday to Friday from 9.30am - 3.30pm AEST.
02 9713 6111 (select option 1)
Send us a message via @ctfaustralia
media & fundraising enquiries
Renee Anschau, Head of Marketing and Fundraising
02 9713 6111 (extension 706)
renee.anschau@ctf.org.au OR fundraising@ctf.org.au
Alternatively, you can submit a form below and we will contact you within three business days.
other ways to stay in touch
Join NF CONNECT!
Each month, we run a series of facilitated zoom sessions for our community to connect on.
WHO: Teens, Young Adults, Parents or Carers and Adults with NF in Australia
HOW: Register by filling out the form on this page
WHAT: Informal chat sessions facilitated by one of our support team
WHY: Make new connections and share similar experiences with an audience who understands you
NF Clinic Contacts
To access any of these clinics you must have a valid referral from your GP or local paediatrician.
Children's Hospital at Westmead
NF Clinic Appointments:
Daralyn Hodgson
Manager Neurogenetics Clinical Services
Email: SCHN-CHW-Neurogenetics@health.nsw.gov.au
Phone: (02) 9845 1325
Referral: Dr Manoj Menezes
Sally Maspero
CNS Neurogenetics/Neurofibromatosis (Tuesday, Wednesday & Thursday)
Email: sally.maspero@health.nsw.gov.au
Phone: (02) 9845 1325
NF1 Learning Disorders Clinic:
Phone: (02) 9845 3057
Referral: Dr Natalie Pride
Royal North Shore Hospital
Appointments:
Assoc. Prof Yemima Berman
Department of Clinical Genetics, Royal North Shore Hospital
Phone: (02) 9463 3057
Email: NSLHD-clinicalgenetics@health.nsw.gov.au
Referral:
Assoc. Prof Yemima Berman
Fax: (02) 9463 1057
The Royal Children's Hospital Melbourne
Appointments:
Phone: (03) 9936 6268
Email: kylie.clark@rch.org.au
Referral:
Dr Gabriel Dabscheck
Fax: (03) 9345 5034
The Royal Melbourne Hospital
Appointments:
Marcia Fleet
Phone: (03) 9342 4589
Email: marcia.fleet@mh.org.au
Referral:
Dr Kate Drummond
Fax: (03) 9342 4234