Head office / general enquiries
For general enquiries, you can reach us:
Level 15, 1 O'Connell Street, Sydney 2000
PO Box 454, Five Dock 2046
support-related enquiries
You can reach our support team Monday to Friday from 9.30am - 3.30pm AEST.
02 9713 6111 (select option 1)
Send us a message via @ctfaustralia
media & fundraising enquiries
Donna Samofal, Marketing and Communications Manager
02 9713 6111 (extension 706)
Alternatively, you can submit a form below and we will contact you within three business days.
other ways to stay in touch
Join NF CONNECT!
Each month, we run a series of facilitated zoom sessions for our community to connect on.
WHO: Teens, Young Adults, Parents or Carers and Adults with NF in Australia
HOW: Register by filling out the form on this page
WHAT: Informal chat sessions facilitated by one of our support team
WHY: Make new connections and share similar experiences with an audience who understands you
CLICK HERE to join our Private Group on Facebook and instantly connect with other NF families!
NF Clinic Contacts
To access any of these clinics you must have a valid referral from your GP or local paediatrician.
Children's Hospital at Westmead
NF Clinic Appointments:
Daralyn Hodgson
Manager Neurogenetics Clinical Services
Email: SCHN-CHW-Neurogenetics@health.nsw.gov.au
Phone: (02) 9845 1325
Referral: Dr Manoj Menezes
Sally Maspero
CNS Neurogenetics/Neurofibromatosis (Tuesday, Wednesday & Thursday)
Email: sally.maspero@health.nsw.gov.au
Phone: (02) 9845 1325
NF1 Learning Disorders Clinic:
Phone: (02) 9845 3057
Referral: Dr Natalie Pride
Royal North Shore Hospital
Appointments:
Assoc. Prof Yemima Berman
Department of Clinical Genetics, Royal North Shore Hospital
Phone: (02) 9463 3057
Email: NSLHD-clinicalgenetics@health.nsw.gov.au
NF Clinic Flyer and NF Skin Clinic Flyer
Referral:
Assoc. Prof Yemima Berman
Fax: (02) 9463 1057
The Royal Children's Hospital Melbourne
Appointments:
Phone: (03) 9936 6268
Email: kylie.clark@rch.org.au
Referral:
Dr Gabriel Dabscheck
Fax: (03) 9345 5034
The Royal Melbourne Hospital
Appointments:
Marcia Fleet
Phone: (03) 9342 4589
Email: marcia.fleet@mh.org.au
Referral:
Dr Kate Drummond
Fax: (03) 9342 4234