Dialog Box

Children's Tumour Foundation of Australia


creating opportunities for community connection around australia 

Living with a rare and relatively unknown genetic condition can be isolating. We provide opportunities for connection that help improve the well-being of those impacted by neurofibromatosis, expanding their networks and ensuring parents, carers, friends and siblings feel informed and supported too.

Our services are available for anyone impacted by NF1, NF2-related schwannomatosis (NF2) and all forms of schwannomatosis (SWN) and span all ages, from children all the way through to adults.

NF connect

Offering an opportunity for the NF community to come together virtually. 

Sessions are held once a month for teens/young adults (18-30yo), adults with NF and parents and carers of children with NF.

Learn more


Camps are run across the country to bring together individuals and families living with NF in a safe place to build connections, form friendships and enjoy some time away from the stress of scans and doctor’s appointments.

See upcoming events

community days

Designed to provide busy families with an opportunity to relax, meet others with similar experiences, and engage with the CTF support team in a safe environment where the focus is on having fun

See upcoming events

Join our private FB group

Outside of the events we organise throughout the year, you can join our closed Facebook group and instantly connect with the CTF and other NF families.  

jOIN fb group 

Connect with a support coordinator

Maybe you have a particular question, or just need someone to listen. You can reach our support team Monday to Friday from 9.00am – 5.00pm AEST on 02 9713 6111 or support@ctf.org.au