creating opportunities for community connection around australia
Living with a rare and relatively unknown genetic condition can be isolating. We provide opportunities for connection that help improve the well-being of those impacted by neurofibromatosis, expanding their networks and ensuring parents, carers, friends and siblings feel informed and supported too.
Our services are available for anyone impacted by NF1, NF2-related schwannomatosis (NF2) and all forms of schwannomatosis (SWN) and span all ages, from children all the way through to adults.
NF connect
Offering an opportunity for the NF community to come together virtually.
Sessions are held once a month for teens/young adults (18-30yo), adults with NF and parents and carers of children with NF.
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camps
Camps are run across the country to bring together individuals and families living with NF in a safe place to build connections, form friendships and enjoy some time away from the stress of scans and doctor’s appointments.
See upcoming events
community days
Designed to provide busy families with an opportunity to relax, meet others with similar experiences, and engage with the CTF support team in a safe environment where the focus is on having fun
See upcoming events