Dialog Box

Children's Tumour Foundation of Australia

How we help

A single gene change can cause a lifetime of tumours

Neurofibromatosis is a hard word to say, but its even harder to live with.

From the time a family first learns that their child has NF, they take their first step on a heart-wrenching journey—one where the outcome will always be uncertain.

Though the severity of the condition ranges from person to person, it is understood that as many as 1 in 5 children will develop a brain tumour, women between 30-50years with NF1 are at a five-fold greater risk for breast cancer than the general population and up to 10% of plexiform neurofibromas (tumours) will become cancerous*

We are the only dedicated neurofibromatosis patient advocacy and support service in Australia for children, adults and their families.

We are there for every parent who has felt their world narrow with the news of a diagnosis. For the sibling who has watched their brother or sister live in pain or miss out on normal childhood experiences. For the adult who is considering a family of their own. For every family that pushes through their darkest moments with extraordinary strength.

Moving towards a future free from tumours

We empower kids, adults and their families with the knowledge, connections and support needed at every stage of their journey, working to improve life outcomes in three ways:


Addressing immediate needs

Beyond the need to treat the physical symptoms of NF, we create opportunities to learn and to come together in safe and supportive spaces.

Read more


Leading change for a better tomorrow

NF is progressive, painful and unpredictable. Our goal is to make life more equitable for those living with this complex genetic condition.

Read more


Giving hope for a future free from tumours

We are one of Australia’s leading charitable contributors to NF research with millions of dollars invested into key projects through on-going advocacy efforts and direct funding.

Read more