The data analysis of this research will seek to meet the study objectives through an assessment of four key impact categories:
Direct impacts: what is the direct health system medical and non-healthcare costs due to NF diagnosis and management?
Indirect impacts: how does NF impact the productivity of people with NF and their families and care givers?
Individual health and wellbeing impacts: how does NF impact the daily function (including physical, social, emotional, and work impacts) of people with NF and their families and care givers?
Health system impacts: what are the current state-based barriers to accessing medical care and treatment for NF? What needs to be improved to enable a better experience for people with NF and their families and caregivers?
Analysis of data across these four impact areas will be reported as key themes, across all survey and consultation responses.