Dialog Box

Children's Tumour Foundation of Australia

Get support

Get support

No one should face an uncertain journey with NF alone

We are a national patient advocacy and support organisation for people impacted by neurofibromatosis (NF) in Australia. We provide free personalised support and resources; advocate for change and raise funds to advance promising research. 

We support families throughout their diagnosis, treatment and beyond. We know that NF can change with each stage of life and no two cases are ever the same. We are here to listen, guide and help you solve the problems you face.

Who we support

We are called the Children’s Tumour Foundation because NF is most often diagnosed in childhood, but we support adults too and everyone touched by NF.

Our community includes everyone living with Neurofibromatosis (NF) in Australia (diagnosed and/or diagnosed), along with their family, carers and friends.

How we can help

  • Free national helpline
  • Support navigating NDIS
  • Informative resources
  • New diagnosis health kit
  • Help speaking to a school or GP
  • Information about our NF Clinics
  • Camps and peer support programs

Connect with a support coordinator

You can reach our support team Monday to Friday from 9.00am – 5.00pm AEST on 02 9713 6111 or support@ctf.org.au

Reasons to get in touch 
  • Diagnosis of neurofibromatosis or schwannomatosis (SWN)
  • Never spoken to anyone about your NF
  • Difficulties accessing healthcare
  • Peer support and connection to others
  • Looking for resources or information about NF
  • Support to help family members understand NF
  • Navigating NDIS

ways to connect

We are here to connect you with balanced information and other NF families.

NF connect

Offering an opportunity for the NF community to come together virtually, sessions are held once a month for:

  • Teens & Young People (18-30yo)
  • Adults with NF
  • Parents and Carers
Learn more

Community events

Throughout the year we provide opportunities for connection to improve the well-being of individuals and expand support networks.

See upcoming events

private fb group

Outside of the events we organise throughout the year, you can join our closed Facebook group and instantly connect with the CTF and other NF families.  

Visit group

not ready to reach out?

Here are some useful links for you to view before you contact our support coordinators.

Learn about nf See our resources Learn about ctf