No one should face an uncertain journey with NF alone
We are a national patient advocacy and support organisation for people impacted by neurofibromatosis (NF) in Australia. We provide free personalised support and resources; advocate for change and raise funds to advance promising research.
We support families throughout their diagnosis, treatment and beyond. We know that NF can change with each stage of life and no two cases are ever the same. We are here to listen, guide and help you solve the problems you face.
Who we support
We are called the Children’s Tumour Foundation because NF is most often diagnosed in childhood, but we support adults too and everyone touched by NF.
Our community includes everyone living with Neurofibromatosis (NF) in Australia (diagnosed and/or diagnosed), along with their family, carers and friends.
How we can help
- Free national helpline
- Support navigating NDIS
- Informative resources
- New diagnosis health kit
- Help speaking to a school or GP
- Information about our NF Clinics
- Camps and peer support programs