At the CTF, we are inspired by the stories of all our NF Heroes – adults and children. NF affects people from all walks of life, and behind every person diagnosed is a different story filled with hopes, fearsand challenges, but also firm reminder of their strength and optimism – these are the stories of our NF Heroes.
NF1 STORIES NF2 STORIES SCHWANNOMATOSIS STORIES
SHARE YOUR NF STORY
Sharing your NF story can be an empowering experience. It may help you to cope with a diagnosis,remind yourself of challenges overcome and validate how you have been feeling. Through their telling, it also helps create a greater sense of community. It is important to feel like you are not alone and that your experiences may help others too.
If you would like to share your story, we want to hear from you.
We are all about inspiring people – that means sharing the ups and the downs. We know you are incredible and that your child is incredible. Now is your turn to shine.
How to share your story:
- Fill out the form below with your contact details, copy of some or all your story and any photos you would like included.
- We will be in touch within three business days to discuss your story and find out a little more about you.
- Any updates to your original story will be sent to you for approval before being published