Dialog Box

Children's Tumour Foundation of Australia

Living with NF


Being diagnosed and living with NF can be difficult. It is natural to feel worried, stressed and upset at times but having NF does not mean that you can’t live a happy and fulfilling life.

NF is a lifelong medical condition requiring surveillance and management by your GP and/or team of specialists. Although NF is often misdiagnosed and misunderstood, the more informed you are about how it affects you personally, the better you will be at managing your own health. This knowledge will provide you with a sense of control and will allow you to focus only on those things you need to be concerned about.

The impact of NF changes with each stage of life. We are called the Children’s Tumour Foundation because NF is most often diagnosed in childhood, but NF is a lifelong condition, and we are committed to supporting and finding treatments for everyone who lives with NF, no matter what age.

More information about each of these stages can be found below.