2023 Australian NF Clinical Symposium

An opportunity for health professionals and researchers to come together, in person and virtually, to network and discuss the latest in medical management, treatment and research into neurofibromatosis in Australia and around the globe.

8:30AM - 6:30PM Friday 28th July 2023

Registrations for this event are now closed.

The Australian NF Clinical Symposium is a day that will stimulate new collaborations, showcase progress and fuel new ideas to conquer NF.

EVENT DETAILS

Date: Friday 28 July 2023

Location: Perpetual Limited Offices - Level 18, 123 Pitt Street, Sydney and online

Start Time: Registration open 8:15 am with the first session to commence at 9 am

Finish time: 5 pm, followed by an NF Networking Event

In-Person Registration: $150 (now closed)

Virtual Registration: $100 (now closed)

VIEW PROGRAM

VIRTUAL ACCESS

Login: Ensure you have activated your profile using the email shared by Arinex/Joyn (mailer@joyn-us.app) with a link to set your password. Be sure to check your junk folder. If you did not receive this email, follow the trouble-shooting instructions below.

Watch live: Press the Watch Live icon on the top menu bar to access the live stream.

Trouble-shooting: If you need technical assistance at any time during the event, please click on the orange support button in the bottom right-hand corner of the platform.

All registrants will have access to watch presentations on demand for up to 12 months following the event.

VISIT PLATFORM

This event showcases both Australian and international speakers sharing their knowledge of NF in a mix of lightning talks, panel discussions and presentations from clinicians and researchers.

This event is exclusively for doctors, clinical specialists, scientists and allied health practitioners who have an interest in, or are working in the field of neurofibromatosis (NF).

Renee-Anschau

KEYNOTE SPEAKER

Dr Jaishri Blakeley

Director, The Johns Hopkins Comprehensive Neurofibromatosis Center

Dr Jaishri Blakeley is a clinician scientist with research expertise in the development of clinical trials for nervous system tumours and specifically, early clinical-translational studies including tumour pharmacokinetic and pharmacodynamic investigations, imaging biomarkers for rare nervous system tumours and incorporation of patient-focused, functional endpoints into efficacy studies.

Keynote: Accelerating discoveries for the neurofibromatoses through team science, and Diagnosis and management of NF1 associated MPNST: present and future

SYMPOSIUM 2023 Speakers

Our keynote speaker will be joined by over a dozen Australian speakers sharing their knowledge of NF in a mix of lightning talks, panel discussions and presentations from clinicians and researchers.

A/Prof Kristi Jones

The Children's Hospital at Westmead

Topic: Preimplantation Genetic Testing for Neurofibromatosis and NF2 related schwannomatosis

A/Prof Aaron Schindeler

The Children's Hospital at Westmead

Topic: NF Gene Therapy is Undercooked – time to make it CRISPR

Prof Anthony Hannan

Florey Institute of Neuroscience and Mental Health

Topic: Modeling autism-like behaviours and cognitive changes in a preclinical mouse model of NF1

Dr Colin Derrick

Perth Children's Hospital

Topic: Audit of ADHD incidence in newly developed Rasopathy service in WA

Navdeep Kaur

The Royal Children's Hospital Melbourne

Topic: Orthoptist-led Neurofibromatosis Type 1 Screening Clinics at the Royal Children’s Hospital, Melbourne

Dr Alison McLean

Royal North Shore Hospital

Topic: Health concerns of individuals with neurofibromatosis - Supporting Reproductive Decision Making in Neurofibromatosis: NF-SURE