Who: Murdoch Children’s Research Institute and The Royal Children’s Hospital
Where: Melbourne
This study tool was developed by Dr Stacie Wang, the first Barney NF Fellow, and resulted in the development of an overall scale to help provide a succinct measure of NF1.
This will be beneficial to facilitate optimal clinical care, clinical communication between specialties, as well as being extremely useful in clinical trial and research about NF1.
If you currently attend the Royal Children’s Hospital NF Clinic in Melbourne you may be approached at your next clinic appointment to participate in this study.