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Navigate Care
Neurofibromatosis (NF) in all its forms is complex. Having the right supports in place to assist on your NF journey is critical.
NF Clinics
There are currently four clinics in Australia specialising in the care of people with NF. At present, the Children's Tumour Foundation funds two paediatric specialist roles at the two paediatric clinics.
Health professionals database
With a national database of healthcare professionals, we can guide individuals and families to locate the services they are looking for. If you would like more information or help finding a specialist, please get in touch on 02 9713 6111.
Assistance with NDIS
Our Support Coordinators can help you navigate the NDIS with NF-specific guidance for you and your health professionals. Contact us whether you’re just starting the process or have been rejected.
Assistance with advising educators
The CTF can represent individuals and speak directly with day-care centres, schools, universities or employers.
Assistance transitioning from paediatric to adult care
The Support Services team can help young people transition from paediatric to adult healthcare with a specialised toolkit for independent illness self-management.
Need further support?
Our Support Team is available Monday-Friday, 9am-5pm. Request a call back to book a time.
Call our helpline on 02 9713 6111 or email our support team on support@ctf.org.au
