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Connect with others
Living with a rare and relatively unknown genetic condition can be isolating. We provide opportunities for connection that help improve the well-being of everyone impacted by neurofibromatosis, expanding their networks and ensuring parents, carers, friends and siblings feel informed and supported too.
NF Connect
These monthly virtual sessions, facilitated by CTF, provide an opportunity for the NF community to come together and share stories, updates and empathy. There are five groups depending on your situation, to ensure you connect with others sharing a similar lived experience.
Camps
Camps are run across the country to bring together individuals and families living with NF in a safe place to build connections, form friendships and enjoy some time away from the stress of scans and doctor’s appointments.
Community days
Designed to provide busy families with an opportunity to relax, meet others with similar experiences, and engage with the CTF support team in a safe environment where the focus is on having fun.
Join our private FB group
Outside of the events we organise throughout the year, you can join our closed Facebook group and instantly connect with the CTF and other NF families.
Connect with a support coordinator
Maybe you have a particular question, or just need someone to listen. You can reach our support team Monday to Friday from 9.00am – 5.00pm AEST on 02 9713 6111 or support@ctf.org.au