NF is a complex and variable condition that can be challenging. We are here to ensure everyone has access to simple information to improve health literacy and support you in managing the condition.


We have a wide range of resources, including fact sheets, specialised toolkits, booklets and personalised health management kits.
These informative tools help address all of the many health issues that can be related to NF.

From time to time, we invite industry experts to join our online information webinars every quarter, focusing on topics of interest to the NF community, ranging from general wellbeing, to specific areas of concern related to the condition.

Maybe you have a particular question, or just need someone to listen. You can reach our support team Monday to Friday from 9.00am – 5.00pm AEST on 02 9713 6111 or support@ctf.org.au

We know that NF can change at each stage of life and you might not need support for months or even years, but the very nature of NF means that things can change without warning.
We can step in to help you whenever you need us, and particularly during key periods in your life or your loved ones, such as:
We share the latest updates on research, trials and treatments across the world, through the CTF website, monthly newsletters (NF round up) and social media channels.
Follow us on social media or subscribe to our newsletter


We host free, hybrid information days throughout the year to keep the NF Community updated with new clinical information, research trials and treatment methods.

When possible, we are able to offer our community the opportunity to take part in facilitated courses spanning a number of weeks, such as the parent support program, Tuning Into Kids (TIK).