NF is a complex condition that requires multidisciplinary care. There are a number of other organisations and services that may be of benefit to you.
NF ResourcesGenetic Information Support for Carers School and employment National HelplinesOther Support Services
The CTF is constantly updating our local resources, but we also recommend visiting our internationally affiliated organisations to check out their resource libraries.
Supporting health professionals with genetics and genomics resources for their practice
Genetic Alliance Australia is a peak umbrella group for rare genetic conditions/diseases
A state-wide service for all people with genetic, undiagnosed and rare conditions, and those who support them.
The GUARD Collaborative is a coalition of peak body organisations that raise awareness, deliver position statements and ageed activities.
Carers Australia is the national peak body representing Australia’s unpaid carers, advocating on their behalf to influence policies and services at a national level.
Carers can get a wide range of help – from counselling and peer support groups, to respite care, home help and equipment.
A free government telephone service that provides legal information, referrals and in some cases, advice for people who have a legal problem in NSW. 1300 888 529
A directory of financial counselling services
FREE — Mental Health Triage Service
FREE — Mental Health Line
Northern Territory Mental Health Line
FREE — 24-hour specialist mental healthcare
FREE — Mental Health Triage Service
FREE — Mental Health Service Helpline
FREE — Nurse on call
Go here for mental health services in your area
FREE — Mental Health Emergency Response Line
Supporting young people aged 4 to 25 who provide care for a family member affected by disability, chronic or mental illness, addiction or frail age.
Beyond Blue provide a range of services including mental health information or 24/7 qualified support for you or someone else.
Free and confidential counselling service for young Aussies (ages 5-25), available on the phone, via email and in live WebChat
24/7 telephone crisis support and suicide prevention services
Telephone and online counselling service for men with family and relationship concerns
Access to local mental health teams for acute mental health situations
Provides free Australia-wide professional telephone and online counselling for anyone affected by suicide (including those bereaved by suicide)
Support if you, or someone you know, is experiencing sexual assault or domestic and family violence.