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Recently Diagnosed
Everyone impacted by NF can receive support
A recent diagnosis of NF can be an overwhelming time as you digest and come to terms emotionally and medically with this information. The Children's Tumour Foundation (CTF) is here for every child and adult diagnosed, along with their families, to provide support, resources, connection, advocacy and clinical links.
Know your medical plan
At the time of diagnosis, it is important that any immediate medical concerns are addressed by your doctor and that plans are put in place for ongoing monitoring and/or treatment.
Get the facts
You can find answers to the commonly asked questions about NF here. We also have a number of resources and information available to support you as you learn more about the condition. As you learn more and read stories, remember that everyone’s journey is different.
Reach out
Talking with others about you or your loved one’s diagnosis can be helpful in lots of ways. We are available Monday – Friday to take your calls and respond to your online enquiries and can put you in touch with community members who understand what it’s like to be where you are now. Our facebook group is another great place to start.
Find doctors
Now that you or your loved one’s NF diagnosis is confirmed, it is important to find a good General Practitioner (GP) and Paediatrician (if under 16 yrs) who you can see regularly. The GP can help connect you to experienced NF specialists for your ongoing health management and also educate you on what other symptoms you should look out for that may (*or may not) arise overtime.
