Every May, we highlight the complexity and diversity of NF. You too can be an advocate by taking part in a fundraiser at your school or workplace. We look forward to shining a light on NF once again in 2026 and hope you can join us!
Step up for children with tumours via a virtual challenge in March. Move your way with a goal of 150km to represent the 150 children born with NF each year.
The NF Clinical Symposium was held in Sydney and online on 4 August 2025. Visit the summary page for an overview of the day, and check back soon for updates, key insights, and interviews with presenters.

Join us for a relaxing weekend in October. Enjoy fun, outdoor activities in a safe environment, rest and recharge together as a family and connect with others living with NF. Spots are limited. Please express your interest to attend.

Ready to take on a challenge and fundraise for kids living with NF tumours? Find an event near you, set your goal and share your fundraiser far and wide.