Our staff

Andy brings over 30 years of experience in marketing, communications, fundraising, and health promotion and advocacy to his role as CEO of the Children’s Tumour Foundation. 

After being diagnosed with cancer at 26, Andy’s journey inspired his dedication to supporting others through tough times and advocating for greater social equity. 

With 15 years in executive leadership roles, primarily in the not-for-profit sector (including the Flying Doctors, Hello Sunday Morning and Soldier On), he combines strategic expertise with a genuine commitment to making a difference. 

Holding a degree in Business and a Master of Public Health, Andy will work to ensure CTF continues to grow and positively impact the lives of Kids with NF and their families.

Email: andy.moore@ctf.org.au

John brings more than 20 years’ experience leading evidence-based, person-centred support services across the cancer, mental health and family support sectors.

After moving to Australia in 2001, John completed graduate studies in counselling psychology and undertook clinical placements in oncology and young carer services. He began his career at Cancer Council NSW, where he led family support and telephone support group programs before stepping into senior management roles overseeing statewide support services.

He went on to lead national support group programs at Prostate Cancer Foundation of Australia, before moving into executive leadership roles at Canteen Australia. At Canteen, John held several executive positions over more than a decade, including leading national service divisions and, most recently, serving as General Manager of Fundraising.

John is passionate about ensuring people impacted by NF can access high-quality, consistent support no matter where they live. He is focused on strengthening specialist partnerships, expanding national reach, and building services that respond to the real and evolving needs of individuals and families affected by NF.

Email: john.friedsam@ctf.org.au

Kirsty Whitehead brings over 20 years of lived experience navigating neurofibromatosis (NF) as the parent of two children living with the condition. She has extensive experience in advocacy, governance and health policy, bringing together lived experience, governance and research to drive evidence-informed policy and system reform.

Over recent years, Kirsty has led advocacy initiatives across the rare disease and disability sectors, working collaboratively with governments, healthcare providers, researchers and community organisations to improve coordinated care and influence health policy. Her work centres on translating community priorities into practical solutions that strengthen healthcare systems and improve outcomes for people living with complex conditions.

As National Advocacy & Partnerships Manager, Kirsty leads CTF's advocacy, government engagement and strategic partnerships, advancing equitable access to care, improving care coordination and identifying opportunities for sustainable system improvement.

Kirsty is passionate about ensuring the voices of people with lived experience shape the policies, research and services that affect them. She is committed to building partnerships that create lasting improvements in healthcare and quality of life for everyone affected by NF.

Email: kirsty.whitehead@ctf.org.au

Lisa has over 30 years of paediatric nursing experience. She started her career at the Royal Alexandra Hospital for Children in Sydney, initially specialising in Orthopaedics, but has since worked in a variety of clinical settings at the Children’s Hospital Westmead. Nursing has also taken Lisa to Western Australia and the Northern Territory.

Lisa has spent much of her time working in in partnership with families of children with chronic conditions, providing support and education and advocating for this vulnerable community. While Lisa’s children were young, she transitioned from the hospital setting and has spent the last few years working as a school nurse, supporting students and their families with a range of health and wellbeing issues.

Lisa’s nursing background has given her an insight into some of the unique challenges faced by individuals living with complex chronic health conditions as well as the impact on families.  She looks forward to working alongside and the Australian NF Community, helping to raise community awareness, provide support, information and connection.

Email: lisa.rowling@ctf.org.au

Terry Moore is the latest member of the Support Services Team and joins us after a career in small business and broadcasting, she has also had roles supporting students and is a tireless community advocate. She is working two days per week at the CTF and has quickly become an important member Support Services Team.

Email: terry.moore@ctf.org.au

Following a desire to work for purpose, Michelle has been engaged in the non-profit sector for over eight years, connecting important causes with active supporters.

Michelle is grateful to have worked with many wonderful charitable organisations, in various marketing and communications roles, having championed for the support of veteran’s families at Legacy, and promoted the saving of lives through first aid, at St John Ambulance Australia NSW.Her most recent appointment was in the marketing team at the BC Children’s Hospital Foundation in British Columbia, Canada, working across the corporate and community giving portfolio on local and national fundraising campaigns, to increase research and equipment funding.

Michelle is particularly interested in working in the areas of health, wellbeing and medical research and is looking forward to advocating for the NF community for greater recognition of and funding for the condition.Her qualifications in marketing, experience in brand building and knowledge of fundraising will allow her to enhance the profile of the Children’s Tumour Foundation.

Email: michelle.olofsson@ctf.org.au

Jessie McGuire has more than 15 years' experience working across the not-for-profit sector in communications, marketing, fundraising and project management. Throughout her career, she has supported organisations in the health, animal welfare and international development sectors, leading projects that strengthen organisations and help maximise their impact.

Passionate about purpose-driven work, Jessie enjoys partnering with small and medium-sized charities to deliver meaningful projects, build stronger connections with their communities and create lasting positive change.

Email: jessie.mcguire@ctf.org.au