Home / Resources / More Resources

More Resources

NF Fact sheets

Download our NF face sheet and NF infographic 

Learning difficulties

A brochure for families about NF1-associated learning challenges and strategies.

Talking to Children about NF 

Sometimes it can be hard to know what to say to children and their siblings about NF. Rest assured we have some tips for you. Check out our Talking with Children information sheet. You may also find the children’s book The NF Hero by Lana Hanssens (who is  a mum of a NF Hero herself) helpful in explaining NF to younger children.

Information for schools

Depending on your child’s level of ability, speaking with your school about an Individual Education Plan (IEP) or supports that they can provide is a good first step. 

Contact our Support Services Team if you would like assistance advocating for your child with their school or to discuss NDIS and other community service-based supports you may be entitled to access. Complete our contact form or call 02 9713 6111. 

Glossary of Terms

Navigate neurofibromatosis terminology using our glossary of terms.

FAQS

Browse the frequently asked questions we get about NF and about CTF.

Looking for something else?

Our support team has a number of other resources available on specific topics or complications seen in NF. Please get in touch on 02 9713 6111 or at info@ctf.org.au for more information.