About Us

We HELP everyone impacted by nf NAVIGATE A PATHWAY FROM FEAR TO HOPE

Formally known as the Neurofibromatosis Association of Australia (NFAA), the Children’s Tumour Foundation was established in 2010 and has grown from a volunteer-based support service to become the peak body in Australia for those impacted by Neurofibromatosis (NF).

We provide hope for everyone impacted Neurofibromatosis in Australia by advocating for change, advancing research and empowering this community with knowledge, connections and support at every stage of their journey. 

Our Purpose

Our purpose is to provide a pathway from fear to hope by empowering those impacted by NF. We do this by providing balanced information, connections to appropriate health services along with connections to each other. 

What We Do

We will do whatever it takes, for as long as it takes until a cure for NF is found. This includes providing practical support for families, funding promising research and creating greater awareness in the community.

Our People

We are committed to open and transparent governance to ensure we achieve our mission and exceed our community and partners’ expectations.

Governance & People

We are governed by an active and experienced Board who work with our management team to ensure we are accountable to all stakeholders.  

Partners and Patrons

Meet our partners and Patrons! Read about how we work together to create community value and achieve important outcomes for those living with NF in Australia.

Our Ambassadors

To help amplify our messages, bring joy to our kids and increase the spread of our fundraising efforts, the CTF relies on the work of our wonderful ambassadors.

Annual Reports

Our financial accounts are externally audited and can be found here. We also publish an annual Year in Review document, which gives a snapshot of our main achievements and activities, along with the impact we make.