Dialog Box

MAY IS NEUROFIBROMATOSIS AWARENESS MONTH

LET'S BRING NF OUT OF THE SHADOWS IN 2023

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NF has lived in the shadows for too long. Help make it visible.

May is Neurofibromatosis (NF) Awareness month (NFAM) and an important time for the Children's Tumour Foundation (CTF) to improve understanding of the signs and symptoms of NF, to share the stories of real people affected by the condition and to educate Australians on the diagnosis and treatment.

NF causes tumours to form on nerve cells, under the skin and deep in the body. It causes a range of significant health issues, including blindness, hearing loss, bone abnormalities, physical differences, learning difficulties, scoliosis, chronic pain and even cancer.

It is unpredictable, progressive and there is no cure.

A child is born with NF every three days, and they will need a lifetime of support.

Let's Bring NF Out of the Shadows this MaY

ways to get involved this may

Let's shine a light on nf

Shine a Light is an initiative that brings NF out of the shadows and into the community as part of NF Awareness Month.

By lighting up buildings, monuments and landmarks blue and green on and around May 17, we put NF in the spotlight and spark a national conversation.

We form part of a global movement working to make NF visible. This initiative started in the US and is now supported by more than 12 countries around the world.

LEARN MORE

let's take steps towards a cure

Help make strides in NF Research by registering for Steps Towards A Cure this May.

It’s FREE to register and you can participate from ANYWHERE in Australia. All it takes is what you've got - step, stride or ride a distance of your choice and collect donations and rewards along the way.

Find out more

let's wear a ribbon in may

Wear a ribbon. Show your support.

This blue and green awareness ribbon is worn as a statement of support for every person living with, or impacted by neurofibromatosis.

You can purchase one to wear through our online store, from Kidstuff and The Trybe stores nationally, or you can order a box to sell at your school, workplace or fundraising event.

ORDER YOUR RIBBON TODAY