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Our Support Services Team is dedicated to developing that suit the needs of our community, so keep an eye on this page and our social media channels (@ctfaustralia) for updates.
CTF US RESOURCES
Feb 2018
Presented by Mr Mark Balwin, a Melbourne-based private plastic surgeon who has experience with removal of NFs via electro desiccation and other methods.
May 2018
Presented by Associate Professor Nigel Biggs a head and neck surgeon at St. Vincent’s Hospital in Sydney covering the latest treatment options for complications of NF2 and Schwannomatosis.
Download the transcript or watch the video below.
March 2019
Presented by Dr Jane Ho & Fabienne Edema-Hildebrand regarding transitioning from paediatric to adult care.
DOWNLOAD THE WEBINAR TRANSCRIPT
July 2019
Presented by Dr Aaron Schindeler (CHW) and Dr Kristina Haebich (MCRI) outlining the process of developing an idea into a clinical trial. Dr Schindeler describes his study on Muscle Weakness in children with NF1.
International guest speaker Prof Michael Fisher, Chief of Neuro Oncology, Children’s Hospital of Philadelphia was joined by some of Australia’s leading NF specialists. The audience consisted of parents and individuals living with NF.
We have compiled a summary of each presentation for you to download and review.
Click each link to view a video recording of each presentation.
The CTF is constantly updating our local resources, but we also recommend visiting our internationally affiliated organisations to check out their resource libraries.
VIEW THEIR RESOURCES
We would like to thank them for allowing us to share their resources on our site and with our community.
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