NF Awareness Month: in the media

Neurofibromatosis (NF) Awareness Month is held each year in May to improve understanding of the signs and symptoms of NF, to share the stories of real people affected by the condition, and to educate Australians on the diagnosis and treatment.

In May 2021 you helped us to start a national conversation about NF to ensure every Australian impacted is supported and every Australian not impacted is made NF aware.

Here are the stories that reached the media across Australia, from TV, radio, national and local newspapers, and magazines. 

Thank you to all of you that shared your story and all of you who supported NF Awareness Month.

Central coast community news

"Claudia helps bring neurofibromatosis out of the shadows."

June 4, 2021

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New Idea

"I spotted my daughter's tumour."

June 4, 2021

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Newcastle weekly

"Hamish is helping bring NF out  of the shadows."

May 28, 2021

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Yahoo aust & NZ

"Mum reveals tiny detail in photo led to daughter's shock diagnosis."

May 25, 2021

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94.9 power fM

"Kiama mother and daughter reveal the pain and uncertainty of NF."

May 24, 2021

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9 honey

"Mother and son diagnosed with the same debilitating genetic condition."

May 22, 2021

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Cessnock advertiser

"Cessnock boy Hamish McClellan and family want to bring Neurofibromatosis 'out of the shadows'."

May 24, 2021

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Daily Mail

"Mum reveals how a tiny detail in her daughter's 4th birthday photo led to a shock diagnosis."

May 26, 2021

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kidspot

"Victorian mum fights for years to get son diagnosed with neurofibromatosis."

May 28, 2021

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the chronicle & courier mail

"Waiting game after lad’s lemon-sized brain tumour removed."

May 24, 2021

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THE QLD TIMES & sunshine coast daily

"Waiting game after lad’s lemon-sized brain tumour removed."

May 19, 2021

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the daily mail

"School bully contacts Janu to say sorry 30 years later"

May 20, 2021

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triple m radio goulburn valley

"Leisha talks with Shepparton local, mum Karla"

May 20, 2021

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The Maitland online news

"It is one of the most common neurological conditions but not too many know about it."

May 17, 2021

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nine news Melbourne

Aleisha Loxley interviews NF Hero Jasmine on Nine News.

May 20, 2021

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the courier

"Max shares his story to raise awareness."

May 17, 2021

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abc news sydney tv

"Happy as Hamish."

May 19, 2021

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ABC news online

Genetic condition neurofibromatosis no barrier for determined Cessnock boy

May 17, 2021

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7 news sydney, brisbane, Melbourne, Adelaide, hobart, perth

"A breakthrough for children struck down by rare and cruel disease - neurofibromatosis."

May 15, 2021

WATCH VIDEO

gold coast bulletin

"Q1 turns blue for battler."

May 11, 2021

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essential kids

Mum's plea for understanding about son's 'invisible' condition:

May 10, 2021

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Canberra times, western advocate & syndicated papers

"Nikkita and her daughters live with NF."

May 9, 2021

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shepparton news, riverine herald

"Shepparton's Xavier Wynn has a dream."

May 7, 2021

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the border mail

"A 'common' but unheard of condition."

May 6, 2021

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the b & t online

"Fashion photographer Scott Ehler works with CTF in new campaign."

May 6, 2021

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herald sun online, daily telegraph online, the courier mail online, Townsville & Gold coast bulletins, Geelong advertiser, Adelaide now

"No cure for nerve tumour condition."

May 2, 2021

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