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Who wants to join me in Showing 2020 Who's Boss? This September I am joining the NF Hero Challenge in support of the Children's Tumour Foundation and families across Australia impacted by Neurofibromatosis (NF). NF is a genetic condition that causes tumours to grow on nerves throughout the body, including the brain and spine. It is progressive, unpredictable and there is no cure. But there is hope. I am proud to be supporting the 1 in 40,000 people in Australia affected by NF2 and raising much needed funds to ensure those impacted can feel supported on their difficult journey ahead. I have a goal to raise $10,000 to support the Children's Tumour Foundation's investment into research, specialist clinics and vital support services. Conquering NF is more than just finding a cure. The NF journey from diagnosis through to treatment is challenging, and most of what families will experience is unknown. Many people come to the CTF at breaking point, seeking help to solve a specific problem or to feel connected to someone who understands their pain. Their sense of isolation and invisibility has only been compounded by COVID. Please help me reach my goal and complete my challenge by making a tax deductible donation. With our powers combined, I believe we can #conquerNF. Be a hero today!
17 Aug 2020
One of the hardest parts of being a parent, was watching our once outgoing, bubbly girl become inherently sad. Libby was so sad, that she no longer wanted to go to places that she had previously loved, like the park, out of fear of being judged by other people for how she looked."
Libby would say that she looked like a monster and thought that everyone would run away screaming if they saw her. Soon after, they started counselling to help heal the emotional wounds from the surgical trauma. This is a part of Libby’s story since then MRIs have found a lot more tumours including one growing in her brain stem. This is now our normal as each MRI reveals another tumour or change.
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