NF is unpredictable. Make your support unshakeable. 

Join our monthly giving program and become part of the Circle of Support.

The Circle of Support

It takes a lot to manage a complex condition like neurofibromatosis (NF). A wide range of symptoms impact different areas of the body and require multiple specialists and allied health professionals. But you too can be part of the team that supports them.

The Circle of Support is a community of caring people committed to improving the lives and health outcomes of everyone impacted by NF in Australia.

When you give monthly, you ensure our work can happen today, and tomorrow. You provide a steady stream of funds that we can count on as we work to conquer NF. With no cure and limited treatment options, there’s more work to be done to improve awareness, understanding and support pathways.

BECOME A REGULAR DONOR

With a regular donation to the Children’s Tumour Foundation, you’ll start building a circle of support around a family living with NF.

1
Donation
2
Details
3
Payment
$25

Can help a newly diagnosed family access a national helpline, NF Clinic and a health management kit

Secure Payment

How your regular donation will help

Investigate

Invest in research that will increase treatment options, and the search for a cure

Support

Care for families via a national helpline, health resources and specialised NF clinics

Connect

Bring kids and their families together via virtual meetups and camps across Australia

Advocate

Make NF a national priority and life more equitable for everyone living with NF

Conquering NF takes a team

This quest isn’t easy – but as hard as it is to be the doctor, researcher or parent navigating the unknown, it’s even tougher to be the child. Progressive and unpredictable, there is no way to know how mildly or severely someone will be affected by their NF.

With you, we can find more of the answers to improve treatments and health outcomes – and eventually a cure.

A single gene change can cause a lifetime of tumours

There are many challenges facing NF. As the only support service and advocacy group for NF, we need your help to turn the page on these issues.

Unclear prognosis

Little is known about how NF progresses and when it may become life-threatening.

Variability of symptoms

NF can cause tumours to grow on any nerve ending in a person’s body.

Delayed diagnosis

Nearly a quarter of surveyed NF patients waited over 4 years for a NF diagnosis.

Prevalence but obscurity

Despite being one of the most common genetic conditions, awareness is low.

Limited expert knowledge

Most doctors and pediatricians have never heard of NF and don’t know how to treat it.

Increased risk of cancer and death

There’s a 4-fold risk of malignancy, and on average, lives are cut short by 10-15 years.