A multi-disciplinary NF clinic run through the Department of Clinical Genetics, it serves as a hub for care of complex NF patients, thanks to funding from the CTF. In addition to running an adult skin clinic that services NF patients from any location in NSW, they also support more complex paediatric patients from within their local area. The clinic also serves as a training ground for geneticists, dermatologists and other medical and nursing staff.
The NF Skin Clinic was established in response to evidence that the cosmetic impacts of NF are of high importance among affected adults. This procedure clinic works to improve the cosmetic management of NF and sits alongside the general management clinic. It provides world-leading treatment for NF skin issues with the use of laser therapy and topical treatments to reduce tumours, itch and other common skin symptoms that affect general wellbeing. The clinic’s collaboration with the Burns Unit allows for improved facilities and the ability to treat more complex lesions. The clinic also continues to look for improved treatments options and runs both clinical and laboratory research into topical therapies for cutaneous skin lesions.
The CTF contributes significant funding to help reduce waiting times and increase capacity. The CTF has also assisted with funding additional laser equipment, which has proved to be beneficial in the treatment of cutaneous neurofibromas.
The video below shows the ease and effectiveness with which this treatment can be delivered by the team.
To access the clinic you must have a valid referral from your GP. Please ensure all referrals are addressed and sent to: Assoc. Prof. Yemima Berman (Department of Clinical Genetics, Royal North Shore Hospital).
NF Centre for Translational Research:
With the generosity of John Hughes (Life Patron) and the Listorti Family, the CTF has funded this centre that aims to support and provide services for the early adoption of new therapies and screening options for people with all types of NF. Recently, one of their studies resulted in women with NF being able to access free Breast Screening from age 30 years rather than the standard 50 years.
Learn more about this study here.