The Children's Tumour Foundation is a not-for-profit organisation dedicated to providing information, resources and support services to children, their families and adults living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2 and schwannomatosis. CTF also raises funds to support promising medical research aimed at finding new treatments and ultimately a cure for NF.
NF1 is one of the most common genetic inherited conditions, affecting up to 1 in 2,500 individuals. It is at least as common as Cystic Fibrosis, Muscular Dystrophy and Huntington's disease, yet there is little community awareness and significant gaps in health services for the NF community across the country.
CTF is committed to ensuring those suffering with NF receive adequate, multidisciplinary care throughout their lives.
CTF has strong links internationally to NF organisations and researchers in the USA, Great Britain, Ireland, Canada and Europe. We also work closely and provide funding to world-class local researchers and clinicians at The Children's Hospital at Westmead, the Murdoch Children's Research Institute and Royal North Shore Hospital.