Malik cuts his hair for kids with NF

We are joining the fight against neurofibromatosis (NF) by raising awareness and funds in support of the Children's Tumour Foundation of Australia (CTF) and more than 10,000 people in Australia living with this devastating condition.

Every 3 days a child is born with neurofibromatosis (NF) in Australia, yet few people have heard of it until quite recently, that was us.

Progressive and unpredictable, NF is a genetic condition that causes tumours to form on nerves in the body, including the brain and spine. These tumours can lead to physical differences, blindness, deafness, learning difficulties, chronic pain and in 10 percent of cases, these tumours can become cancerous.

It is often said that neurofibromatosis is a hard word to say, but even harder to live with. We can certainly believe it after our friend Emmy's daughter, Ishq was diagnosed with the condition.

Maliks first hair cut is a big milestone in his childhood and is an emotional moment for us because this haircut signifies Malik is growing up! It was important for us to use this milestone to teach Malik about the importance of helping others like his friend Ishq, who was diagnosed with NF at just 12 months old.

We wanted to show him that together we can spread awareness to help other families who are living with NF and of course raise funds to support the Childrens Tumour Foundation of Australia.

We have a goal to raise $5000 in support of the 10,000 people in Australia living with NF.

More than 400 families across Australia call on the support of the Children’s Tumour Foundation every year. In addition to investing in Australian NF research, funds raised ensure everyone impacted by NF, regardless of location, type or financial position can access balanced information and support free of charge when they need it.

We believe that tumours should never be a child's normal, so please help us reach our goal by making a tax-deductible donation today.

Thank you.