The Children's Tumour Foundation of Australia warmly invites you to attend an NF Community Information Seminar, focusing on adolescence and adults.
Date: Saturday 21st October 2017
Venue: The Children’s Hospital at Westmead - Lorimer Dods Lecture Theatre (214 Hawkesbury Road, Westmead, NSW 2145)
Time: 10:30am - 1:00pm
Who: This event is for the NF community to come together and learn about Neurofibromatosis.
Our guest speakers will discuss a range of topics from NF in Adults and managing the transition from adolescence to treatments for NF 2 patients. Once all topics have been covered, there will be a short Q&A panel with all the speakers.
The seminar will also be live streamed and recorded so people outside of Sydney, who are unable to attend can log in and take part.
After the seminar has concluded, there will be a small morning tea for attendees in Sydney which is a great opportunity to meet new people as well as chat to our speakers and ask any additional questions.
If you are intending to watch online, please watch this space as we will be releasing more information shortly!
EVENT SCHEDULE (DRAFT)
10:30am: Start of Seminar with Short Introduction - CTF Representative
10:40am: NF and Adolescence - Professor Rosalie Ferner, Neurologist, Guys & St Thomas Hospital, London, UK
11:00am: Impact of a skin clinic for Patients with NF1 - Claire Wong, Genetic Counselling Student Sydney
11:20am: Treatment of NF2 using Avastin - Katrina Morris, Neurologist, RNSH
11:40am: Cancer risk in adulthood, Breast cancer screening in NF1 - Ashley Crook, Genetic Counsellor, RNSH
12:00pm: 30min Q&A Panel - All Speakers
12:30pm: Wrap up of Panel and Seminar followed by morning tea for attendees
1:00pm: End of Event
Keynote Speaker: Professor Rosalie Ferner
Professor Rosalie Ferner graduated in modern languages from University College London and studied Medicine at the Medical School of Newcastle on Tyne. She undertook training in general medicine in Newcastle and gained experience in oncology at the Royal Marsden Hospital, London. She was accredited in neurology in 1996 and has been a consultant neurologist at Guy’s and St Thomas’ since 1999. She was appointed Professor of neurology in 2010 and is chairman of the medical advisory board of the national Neuro Foundation. She has been national lead for the nationally commissioned NF1 service since 2009 and lead for the London NF2 service since 2010. The aim of these national neurofibromatosis services is to give expert, multidisciplinary, holistic care for people with complex, multi-system diseases.
Dr Katrina Morris BMedSci MBBS (Hons) PhD FRACP
Dr Morris is a general neurologist with a particular interest in Neurofibromatosis, Neurogenetics and Neuro-Oncology. Dr Katrina Morris completed her neurology training in Sydney at St Vincents, Royal Prince Alfred and Concord Repatriation General Hospitals before taking up the ANZAN fellowship at the John Radcliffe Hospital in Oxford, UK. She then undertook a clinical research fellowship in Neuro-Oncology in Oxford. Her research on the UK Neurofibromatosis type 2 population treated with bevacizumab led to a PhD awarded in 2017. Dr Morris consults at the Chris O’Brien Life House and the NF clinic at Royal North Shore Hospital. She is currently a locum staff specialist at Concord Repatriation General Hospital.
Ashley Crook, Genetic Counsellor - Department of Clinical Genetics
Ashley is a genetic counsellor at the department of clinical genetics at Royal North Shore Hospital. She has experience working with adults and children with NF1 and NF2, and has previously worked in cancer genetics. She is currently helping to establish a breast screening trial in NF1 patients at Royal North Shore Hospital, which is hoped to improve care of women with NF1.
ADDITIONAL BIOS TO COME
|This event is proudly supported by the Australian Chinese Charity Foundation Inc.||