Children's Tumour Foundation Australia
The only organisation in Australia that supports the 1 in 2,500 Australians living with Neurofibromatosis.
The Children's Tumour Foundation of Australia is a not-for-profit organisation dedicated to providing information, resources and support services to children, their famililes and adults living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2 and Schwannomatosis. CTF also raises funds to support promising medical research aimed at finding new treatments and ultimately a cure for NF.
Neurofibromatosis (NF) is one of the most common genetic conditions. It can affect anyone regardless of ethnicity, age, gender or family history. Sufferers develop benign tumours called neurofibromas, which grow around the body's nerve cells - under the surface of the skin, deep in the body, including the spinal cord and brain. These growths can cause sufferers problems with their vision and balance - even blindness and deafness.
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